fbpx Saturday, 13 April, 8:00 amThursday, Jan 1, 12:00 am

Harriet’s Journey- Coast to Care

Supporting Harriet's LCH journey

When: Saturday, 13 April, 8:00 am
Where: Gold Coast University Hospital to Queensland Children’s Hospital in Brisbane.

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In 2023 4-month-old baby girl, Harriet was diagnosed with Multi-System Langerhans Cell Histiocytosis (LCH), affecting the bones in her shoulder, ribs, spine and eye socket, her liver and the skin on her scalp.
Harriet had stopped lifting her left arm, she could still grasp items but was very reluctant to move it, and her concerned parents took her to Gold Coast University Hospital’s Emergency Department. After a couple of examinations and an X-Ray, the findings were that she had an area in her shoulder bone, about the size of a 10c piece that looked as if it was missing, the Doctor was concerned and thought it could have been some sort of bone infection. She was kept in the hospital for a few days whilst tests were conducted. It wasn’t until a week later that an official diagnosis was given.
Simply put Langerhans Cell Histiocytosis is a rare disease that occurs when normal Langerhans cells lose their ability to fight infection and instead group together to destroy healthy tissue. This cluster of abnormal cells results in tumour-like lesions that begin to destroy normal tissues in the bones, skin, or other body systems.
Harriet’s Dad, Dave is training up for a Charity event in April ‘24 where he plans to run from Gold Coast University Hospital to Queensland Children’s Hospital in Brisbane, 73km. Harriet’s journey started in the Gold Coast and hopefully will finish up in Brisbane once her treatment finally ends.
The goal is to raise $10,000.
The funds will be split with 40% going to Redkite, 40% will be going to Fiona Elsey Cancer Research Institute research into understanding the basic biology of histiocytic diseases.
The final 20% will help Harriet’s family. Harriet has weekly trips to the hospital which include parking fees, fuel costs and prescription medicine. Also, with Harriet’s chemotherapy treatment, she has become immuno compromised meaning her ability to fight off viruses and infections is significantly lower than other children her age, which in turn means she cannot attend any daycare.